Thursday, January 13, 2011

Baby Daylon - What a lucky little kid!

If you have visited my blog very many times you have probably noticed a link to Daylon's blog on the side bar. Daylon is an amazing kid from an amazing family.
Daylon was born with a disease called Junctional Herlitz Epidermolysis Bullosa.

I began following Daylon's blog after I learned about him through a food blog that I visited one day. I began reading and following Daylon's family as they began their journey through a bone marrow transplant in and effort to help Daylon to have a better life.
Daylon's disease is a very serious one. One that usually takes a child's life before the age of one.
Daylon's treatment has not been trial free
but, it has bought him valuable time with his family.

Daylon is the youngest of 5 amazing children.
Daylon's siblings have learned compassion and service beyond their tender years.
They will forever be better people for having carried their sweet little brother.

He Ain't Heavy He's My Brother.



Let me tell you what I have learned about Daylon. He is an inspiration.
He has such a sweet demeanor. I am not saying he has never shed a tear, but... He is pleasant and enjoyable to take care of. You can just tell through his blog. What other kid will still smile when he has erosions on his eyes and it is too painful to open them. Daylon seems to be glad to be alive even though his life has been tough.
Daylon has set an amazing example for those around him.

I have been privileged to watch Daylon's amazing family keep their faith in God as they have watched their baby walk through the valley of the shadow of death and back multiple times.
The immense pain that all of them have been through has been difficult to even imagine.

Life is not a fairy tale, but this family will have their happily ever after.
This family is going to make it through their trials and reach their goal and be a forever family.
Life will continue to be filled with trials and difficulties, but it will all be worth it.

Daylon's parents have firm testimonies of the gospel of Jesus Christ and they have leaned hard on their belief in the gospel to sustain them as they have endured these trials.
Hats off to you both. Thank you for setting such an amazing example of tenacity.

Thank you to the Edling family for setting such an amazing example to me personally as you have passed through such difficult trials with such faith.


5 comments:

  1. Cheryl,
    I don't even know what to say.
    Thank you for such heart felt words about our little Daylon. You have been such a wonderful part of our support system. Your kind words have touched our hearts. Thank you! Love you! Jennifer

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  2. I am so happy to have had the opportunity to share in the journey!
    As we go through life I love getting to rub shoulders with great people! :o)
    Cheryl

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  3. Oops Angela's reply ended up under the wrong post...

    "Aggie- said...

    I will have to start following his blog, what an amazing little boy...seems he is blessed with a wonderful family. Thank you for sharing!

    January 13, 2011 9:22 PM"
    visit her at - http://complex-simplicity-aftertransplant.blogspot.com/

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  4. I have had the privilege to be one of Daylon's and the Edling's prayer warriors! I too am amazed at the family strength and the courage to fight whenever needed. I am not amazed that God chose them for his parents, He knew exactly what Daylon would need. I continue to pray for them and the other EB kids that have traveled through the BMT journey.

    Thanks for eloquently writing what my heart feels.

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  5. Thanks for stopping in Kim.
    Thank you for your prayers for Daylon.

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